| Pages: 1 2 :: [one page] |
| Author |
Thread Statistics | Show CCP posts - 0 post(s) |
Lord Slater
   |
Posted - 2006.04.30 16:27:00 -
[1]
Hi was just curious if anyone else who plays eve has END STAGE RENAL FAILURe like me.
|
Purgatori
|
Posted - 2006.04.30 16:36:00 -
[2]
And that is ?
|
Laythun
|
Posted - 2006.04.30 16:37:00 -
[3]
 Originally by: Purgatori
And that is ?
a joke?
---------------------------------------------
If im flaming or not contributing im sorry, but im trying to get into th [23]
|
Purgatori
|
Posted - 2006.04.30 16:38:00 -
[4]
Edited by: Purgatori on 30/04/2006 16:39:50
Originally by: Laythun
Originally by: Purgatori
And that is ?
a joke?
What is a joke and where do i loot it?
And im guessing what i think it is but could be wrong, So i am wondering what it is .
|
Lord Slater
|
Posted - 2006.04.30 16:40:00 -
[5]
Comment about what you know about pls. 
|
David Godfrey
|
Posted - 2006.04.30 16:41:00 -
[6]
Roflmao,
Robbie has that 
-----------
They may take our lives but they will never take our freedom!
OMFG What the hell !?!?! Fate ^^ |
Purgatori
|
Posted - 2006.04.30 16:41:00 -
[7]
Originally by: Lord Slater
Comment about what you know about pls.
If your being serious im guessing you been sitting down to long and has caused a problem ? Or not enought fibre in diet?
Depends what You on about
|
Jenny Spitfire
|
Posted - 2006.04.30 16:48:00 -
[8]
Edited by: Jenny Spitfire on 30/04/2006 16:48:58
... must hurts a lot. On dialysis?
/me wishes you well.
EDIT: Only uni or bi-failure?
----------------
MAY 1st - We love Khatred day.
RecruitMe@NOINT! |
Lord Slater
|
Posted - 2006.04.30 16:48:00 -
[9]
Ok seems a lot of peeps bullying the Transplant patient here.
END STAGE RENAL FAILURE = Kidney Failure [ as in they stop working and i die without lifelong treatment or a transplant kidney].
Now back on topic anyone else have it like me im just curious.
|
Lord Slater
|
Posted - 2006.04.30 16:52:00 -
[10]
Edited by: Lord Slater on 30/04/2006 16:53:00
Originally by: Jenny Spitfire
Edited by: Jenny Spitfire on 30/04/2006 16:48:58
... must hurts a lot. On dialysis?
/me wishes you well.
EDIT: Only uni or bi-failure?
I only do 10 hours dialisis per day fortunatly CAPD [Homechoice system], Im told its barly enough to stop me getting sicker [sadly tho toxin levels still rise occasionally] So im REALLY hoping for a kidney one day.
EDIT: As in if just one kidney faild or both well it was both.
|
Purgatori
|
Posted - 2006.04.30 16:53:00 -
[11]
Originally by: Lord Slater
Ok seems a lot of peeps bullying the Transplant patient here.
END STAGE RENAL FAILURE = Kidney Failure [ as in they stop working and i die without lifelong treatment or a transplant kidney].
Now back on topic anyone else have it like me im just curious.
Not what i thought it was. Thought it was for having trouble going to the toilet or something.
No advice here sorry bud. Try google a few things to see if any sites on it. Normally some good sites that give some good info on such problems . Ill have a look to see if can find any sites and link them here .
Other then that ask your local GP for a leaflet on it.
Phone your local Hospital to see a counclor who can talk you through it and good adivce
Hmm will post more whn find linkys
|
Lord Slater
|
Posted - 2006.04.30 16:55:00 -
[12]
Originally by: Purgatori
Originally by: Lord Slater
Ok seems a lot of peeps bullying the Transplant patient here.
END STAGE RENAL FAILURE = Kidney Failure [ as in they stop working and i die without lifelong treatment or a transplant kidney].
Now back on topic anyone else have it like me im just curious.
Not what i thought it was. Thought it was for having trouble going to the toilet or something.
No advice here sorry bud. Try google a few things to see if any sites on it. Normally some good sites that give some good info on such problems . Ill have a look to see if can find any sites and link them here .
Other then that ask your local GP for a leaflet on it.
Phone your local Hospital to see a counclor who can talk you through it and good adivce
Hmm will post more whn find linkys
Oh no dont worry had it for 5 yers now im used to felling sick and tired all the time  i was just wondering if anyone in eve had it too [always nice to chat to fellow patients, Who understand.
|
Jenny Spitfire
|
Posted - 2006.04.30 16:55:00 -
[13]
Originally by: Lord Slater
Edited by: Lord Slater on 30/04/2006 16:53:00
Originally by: Jenny Spitfire
Edited by: Jenny Spitfire on 30/04/2006 16:48:58
... must hurts a lot. On dialysis?
/me wishes you well.
EDIT: Only uni or bi-failure?
I only do 10 hours dialisis per day fortunatly CAPD [Homechoice system], Im told its barly enough to stop me getting sicker [sadly tho toxin levels still rise occasionally] So im REALLY hoping for a kidney one day.
EDIT: As in if just one kidney faild or both well it was both.
Both? 
Hope you will get a donor soon...
Best wishes and get well soon.
----------------
MAY 1st - We love Khatred day.
RecruitMe@NOINT! |
Jenny Spitfire
|
Posted - 2006.04.30 16:57:00 -
[14]
Originally by: Lord Slater
Oh no dont worry had it for 5 yers now im used to felling sick and tired all the time i was just wondering if anyone in eve had it too [always nice to chat to fellow patients, Who understand.
No problems. I love to chat with people in need. Not a patient but I just know a few things or two.
How did you get renal failures in the first place? Too much salt or genetic disorders?
----------------
MAY 1st - We love Khatred day.
RecruitMe@NOINT! |
Lord Slater
|
Posted - 2006.04.30 16:59:00 -
[15]
I would like to thank eve tho for the past 5 years i have been too sick to get work or to further an education i have limited social contacts now because i have to be on a machine 10 hours a day, Nowadays i only have 2 main ways of socialising.....
1. Games Workshop.
2. Playing eve surfing the web.
So i just want to say thanks eve for keeping me sane, And i hope you keep on going.
Heh ive done most things in eve now some good some bad and ive never tired of eve.
And the community in game and in forum is really great too
THANK YOU
|
Lord Slater
|
Posted - 2006.04.30 17:05:00 -
[16]
Originally by: Jenny Spitfire
Originally by: Lord Slater
Oh no dont worry had it for 5 yers now im used to felling sick and tired all the time i was just wondering if anyone in eve had it too [always nice to chat to fellow patients, Who understand.
No problems. I love to chat with people in need. Not a patient but I just know a few things or two.
How did you get renal failures in the first place? Too much salt or genetic disorders?
According to Biopsys repeated Kidney infections [Local General doctors were incompetent]
Heh good example of there incompetence was this ,........
Felling sick for past 2 weeks getting wors every day one hour before seeing doctor i was running around my home deliberatly bashing my head against a wall to clear my mind [i couldnt hold a thought at all] got taken to doctor was diagnosed with a mental illness.
Got admited to local loony bin after one look at me and 2 minuites with a REAL docktor i was rushed to hospital and diagnosed With KIDney failure.
What really scares me is i was tiold a month after wards that the doctors gave me a 20% chance of surviving the night when i got to hospital.
Needless to say when the local Kidney professor heard My story he sent a REALLY dirty letter to my Genreal Doctor. He even came to my home to apologise PERSONALLY 
HEH as you can see i have alot on my chest
|
Stubnitz
|
Posted - 2006.04.30 17:09:00 -
[17]
Damn i must remember to stop moaning about my stupid petty problems..
what are the chances of a transplant?
|
Lord Slater
|
Posted - 2006.04.30 17:12:00 -
[18]
Originally by: Stubnitz
Damn i must remember to stop moaning about my stupid petty problems..
what are the chances of a transplant?
I MAY If it matches my tissue type get one within 25 years
|
Jenny Spitfire
|
Posted - 2006.04.30 17:12:00 -
[19]
Originally by: Lord Slater
...
Poor you 
Guess kidney problems (e.g. stone in kidneys, etc.) are really the most painful of all pains in a human body. Can understand the need to bash your head to clear your mind coz they do hurt a lot.
Well, just feel free to chat with the community. Heard that mods are always available to talk to too.
----------------
MAY 1st - We love Khatred day.
RecruitMe@NOINT! |
Lord Slater
|
Posted - 2006.04.30 17:16:00 -
[20]
Originally by: Jenny Spitfire
Originally by: Lord Slater
...
Poor you
Guess kidney problems (e.g. stone in kidneys, etc.) are really the most painful of all pains in a human body. Can understand the need to bash your head to clear your mind coz they do hurt a lot.
Well, just feel free to chat with the community. Heard that mods are always available to talk to too.
Actally it wasant stones basically about a week before hand the kidneys stoped filtering toxins from my blood, So basically on that day my organs were going haywire and shutting down due to being poisoned by my own poluted blood.
Usually your bodys Kidneys Filter out toxins from your blood such as Potassium And Phosphate which is found in all foods.
Because of this im also on a special diet too similar to what say a Diebetic has Exept i have to avoid other foods such as exess potato soupe mushrooms most vegitables etc.
|
nahtoh
|
Posted - 2006.04.30 17:18:00 -
[21]
Gooddamm man that must really hurt, lost over 90% of kidney fuction for a week once...Docs had absoulty no idea what caused it, but it self corrected thankfully.
Come to think of it the biopsey they carried out showed no underlying problems.
Keep you chin up bud...
=========
"I am not saying there should be capital punishment for stupidity, but why can`t we just take the safety labels off everything and let the problem fix its self |
Jenny Spitfire
|
Posted - 2006.04.30 17:22:00 -
[22]
Originally by: Lord Slater
Originally by: Jenny Spitfire
Originally by: Lord Slater
...
Poor you
Guess kidney problems (e.g. stone in kidneys, etc.) are really the most painful of all pains in a human body. Can understand the need to bash your head to clear your mind coz they do hurt a lot.
Well, just feel free to chat with the community. Heard that mods are always available to talk to too.
Actally it wasant stones basically about a week before hand the kidneys stoped filtering toxins from my blood, So basically on that day my organs were going haywire and shutting down due to being poisoned by my own poluted blood.
Usually your bodys Kidneys Filter out toxins from your blood such as Potassium And Phosphate which is found in all foods.
Because of this im also on a special diet too similar to what say a Diebetic has Exept i have to avoid other foods such as exess potato soupe mushrooms most vegitables etc.
I know it wasnt stone for you because it is a renal failure. But any problem with renal is always extreme pain. AFAIK, they are the pain of all pains. I thought the main criteria for a transplant is only compatible blood type, no?
----------------
MAY 1st - We love Khatred day.
RecruitMe@NOINT! |
Jenny Spitfire
|
Posted - 2006.04.30 17:26:00 -
[23]
Originally by: Lord Slater
They also test for genetic markers from your blood to see how clost it is to your own tissue type. Basically the closer it is the less Immunity supresent drugs you need to take.
Roughly 24 vials of blood tests.
Maybe just loan 1 from relatives?
----------------
MAY 1st - We love Khatred day.
RecruitMe@NOINT! |
Lord Slater
|
Posted - 2006.04.30 17:26:00 -
[24]
Originally by: Jenny Spitfire
Originally by: Lord Slater
Originally by: Jenny Spitfire
Originally by: Lord Slater
...
Poor you
Guess kidney problems (e.g. stone in kidneys, etc.) are really the most painful of all pains in a human body. Can understand the need to bash your head to clear your mind coz they do hurt a lot.
Well, just feel free to chat with the community. Heard that mods are always available to talk to too.
Actally it wasant stones basically about a week before hand the kidneys stoped filtering toxins from my blood, So basically on that day my organs were going haywire and shutting down due to being poisoned by my own poluted blood.
Usually your bodys Kidneys Filter out toxins from your blood such as Potassium And Phosphate which is found in all foods.
Because of this im also on a special diet too similar to what say a Diebetic has Exept i have to avoid other foods such as exess potato soupe mushrooms most vegitables etc.
I know it wasnt stone for you because it is a renal failure. But any problem with renal is always extreme pain. AFAIK, they are the pain of all pains. I thought the main criteria for a transplant is only compatible blood type, no?
They also test for genetic markers from your blood to see how clost it is to your own tissue type. Basically the closer it is the less Immunity supresent drugs you need to take.
Roughly 24 vials of blood tests.
|
Lord Slater
|
Posted - 2006.04.30 17:30:00 -
[25]
Originally by: Jenny Spitfire
Originally by: Lord Slater
They also test for genetic markers from your blood to see how clost it is to your own tissue type. Basically the closer it is the less Immunity supresent drugs you need to take.
Roughly 24 vials of blood tests.
Maybe just loan 1 from relatives?
Tried that mother is diabetic. Father has heart trouble [mild nothing to worry about]. Brother is too young. Uncles are not intersted.
|
Adoran Wa'alle
|
Posted - 2006.04.30 18:51:00 -
[26]
Originally by: Lord Slater
Originally by: Jenny Spitfire
Originally by: Lord Slater
They also test for genetic markers from your blood to see how clost it is to your own tissue type. Basically the closer it is the less Immunity supresent drugs you need to take.
Roughly 24 vials of blood tests.
Maybe just loan 1 from relatives?
Tried that mother is diabetic. Father has heart trouble [mild nothing to worry about]. Brother is too young. Uncles are not intersted.
Wait out your brother...feed him well 
Sorry 'bout your sickness, though  Must be terrible. Don't know anyone who has it
-------------------------------------
Want a forum Signature? Click me, or contact me in-game |
Jenny Spitfire
|
Posted - 2006.04.30 18:53:00 -
[27]
Edited by: Jenny Spitfire on 30/04/2006 18:53:31
Originally by: Adoran Wa'alle
Wait out your brother...feed him well
Yar, guess that is the only way to go for now. Just take good care of him so you can harvest him later. Then, take care of him more in the future for the gift.
----------------
MAY 1st - We love Khatred day.
RecruitMe@NOINT! |
Cypherous
|
Posted - 2006.04.30 20:06:00 -
[28]
Damn man that sucks, wish you well dude, hope everything turns out well.
O RLY?! --Jorauk
Way cooler than Jorauk - Cortes |
Kasibee'an
|
Posted - 2006.04.30 20:24:00 -
[29]
They'll be growing you a new kidney soon. Recently an American woman had a liver transplanted into her, made in the lab from her own cells thus no fear of rejection. New technology also allows stem cells to be created from an adults own cells, negating the ethical issues of needing to acquire them from a foetus. There's a lot of amazing stuff on the way.
|
Nikolai Nuvolari
|
Posted - 2006.04.30 20:47:00 -
[30]
I'm curious, is it possible to sleep while the dialysis machine is running?
--------
Tom Thumb > for a nut case you rawk
[04:21:15] Mebrithiel Ju'wien > Nik's bio 4tw btw
[07:38:53] Graelyn > Nikolai for Dev 108!
|
LWMaverick
|
Posted - 2006.04.30 21:03:00 -
[31]
/me wishes you well
/Mav
Spirits in the night! Allll Niiight!! |
Lord Slater
|
Posted - 2006.04.30 21:32:00 -
[32]
Originally by: Jenny Spitfire
Edited by: Jenny Spitfire on 30/04/2006 18:53:31
Originally by: Adoran Wa'alle
Wait out your brother...feed him well
Yar, guess that is the only way to go for now. Just take good care of him so you can harvest him later. Then, take care of him more in the future for the gift.
Lol i often joke about that too then say save the left one for me
YARRR HAHAHA im the happy pirate YARRRR |
Lord Slater
|
Posted - 2006.04.30 21:34:00 -
[33]
Originally by: Kasibee'an
They'll be growing you a new kidney soon. Recently an American woman had a liver transplanted into her, made in the lab from her own cells thus no fear of rejection. New technology also allows stem cells to be created from an adults own cells, negating the ethical issues of needing to acquire them from a foetus. There's a lot of amazing stuff on the way.
Yea heard about that too perhaps in 20 - 30 years, so heres to stem cells
YARRR HAHAHA im the happy pirate YARRRR |
Lord Slater
|
Posted - 2006.04.30 21:35:00 -
[34]
Originally by: Nikolai Nuvolari
I'm curious, is it possible to sleep while the dialysis machine is running?
yes it is i go on at 11pm and its done br about 9-10 am so no nightlife then a teatime dialasis that lasts 45 mins[ i take this one at 6pm ].
YARRR HAHAHA im the happy pirate YARRRR |
Meridius
|
Posted - 2006.04.30 21:38:00 -
[35]
Really sorry to hear about your condition dude, hope it all works out for you.
_
__
|
Hilion Narath
|
Posted - 2006.04.30 22:06:00 -
[36]
Well, mine isn't that bad, but I've only got one Kidney, ahd the other taken out. The one Ive got left is above average though, so I do alright. Hopefully nothing'll happen to it. Doctors are great, but an incompetent doctor can almost be worse than nothing.
---------
Hilion Narath - Pilot |
Womble God
|
Posted - 2006.05.03 19:09:00 -
[37]
Im sorry to hear about your condition and was wondering what the chances are of getting a donated kidney from someone other than a member of your own family? Does it require both of you to have the same blood type etc?
Killing Smurfs without prejudice since 1978 |
Kindakrof
|
Posted - 2006.05.03 19:14:00 -
[38]
I suggest everyone mail the OP a cookie or slice of brownie for sympathy reasons
----
The _Ultimate_ thread
[black][h6]my sig |
Lord Slater
|
Posted - 2006.05.03 22:33:00 -
[39]
Originally by: Womble God
Im sorry to hear about your condition and was wondering what the chances are of getting a donated kidney from someone other than a member of your own family? Does it require both of you to have the same blood type etc?
There is a chance of a live donor kidney from a non family member, Live donor kidneys are worth more than necrotic kidneys of course because they are fresher [lol]. But its harder to get a genetic close match with a non family member.
If i rmember right there is a series of 6 markers that need amtching up [the more that match up the better]. and the blood type should be the same. Also the donor has to be of the same race.
Also the donor goes through a rigorous interview process to assess them phycologically and to make sure they are not doing it for money. Also thy test the donor to see that HE?SHE will be okay with just one kidney.
So the likelyhood of a live kidney from a stranger non family friend is remote. Most likely id get a kidney from a drink drive victime in the christmas period because its the most likely time to get kidneys.
You know i dont think about this a lot but it would be strange to get a kidney from a dead person.
YARRR HAHAHA im the happy pirate YARRRR |
Lord Slater
|
Posted - 2006.05.03 23:10:00 -
[40]
Originally by: Kindakrof
I suggest everyone mail the OP a cookie or slice of brownie for sympathy reasons
Lol thank you for the cookie's.
YARRR HAHAHA im the happy pirate YARRRR |
Wrayeth
|
Posted - 2006.05.04 06:16:00 -
[41]
Damn, man. I hope they find a donor soonÖ.
On a happier note, I think they can now successfully clone and grow some organs without having to clone the rest of the individual (saw a news bit about that), so hopefully vat-grown kidneys aren't too far off. Then, as long as it's not a genetic defect causing your kidney problems, you should be able to get an exact genetic match with little chance of rejection. :)
-Wrayeth
"Look, pa! I just contributed absolutely nothing to this thread!" |
Dak Hakin
|
Posted - 2006.05.04 06:29:00 -
[42]
That sucks man. As a diabetic, I can understand a little of what you are going through, and I know how it feels when your body just sort of rejects you, as thats how I felt when I got the diagnosis for diabetis. Luckily I have avoided the kidney problems thus far, but I have to watch my diet.
Best of luck to you friend.
_______________________________________________
I am the devil, and I'm here to do the devils work.
Mr. Grumpy-sour-pus
|
Lord Slater
|
Posted - 2006.05.04 15:59:00 -
[43]
Originally by: Dak Hakin
That sucks man. As a diabetic, I can understand a little of what you are going through, and I know how it feels when your body just sort of rejects you, as thats how I felt when I got the diagnosis for diabetis. Luckily I have avoided the kidney problems thus far, but I have to watch my diet.
Best of luck to you friend.
yea my mother has type 2 diabetes [insulin injection] i know all about that and am glad non of thats happened yet.
YARRR HAHAHA im the happy pirate YARRRR |
Imran
|
Posted - 2006.05.04 21:35:00 -
[44]
Argh .;(, gl with that :(
While on topic of diabetes, whatcha guys think of the new inhalent version of insulin, it was just approved in the US by the FDA :o no more needles ;o
(family has history of diabetes, im the lucky one ><)
EwokPoacher: Why hate Gallente?
Blackest Sheep: Because we are beautiful |
Raven Aure
|
Posted - 2006.05.04 21:41:00 -
[45]
Originally by: Imran
Argh .;(, gl with that :(
While on topic of diabetes, whatcha guys think of the new inhalent version of insulin, it was just approved in the US by the FDA :o no more needles ;o
(family has history of diabetes, im the lucky one ><)
It's not been approved on the NHS in the UK for cost reasons. Will be interesting to see what happens.
______________________
Originally by: Jim McGregor
Most people are in write-mode only in these forums
106 days and still a hijack virgin... |
Laocoon
|
Posted - 2006.05.04 22:05:00 -
[46]
Originally by: Raven Aure
It's not been approved on the NHS in the UK for cost reasons.
Typical, eh?
Gl to the op
Channels 'Bar Veto' (IC) & Public Channel 'Veto' for info.  |
Corunna ElMan
|
Posted - 2006.05.07 15:35:00 -
[47]
I don't have ESRD, but I am a hemodialysis technician and I work at a free-standing (not part of a hospital) dialysis center with about 150 patients.
You might want to talk to your nephrologist and see if hemodialysis is an option for you. You will get a better clearance (that is to day, the toxins will be more effectively filtered from your system), you won't feel so bloated, and treatments are around three hours each, three times a week. Also, it doesn't require such an obsessive sterile procedure and you avoid risks such as peritonitis.
At any rate, the best thing you can do to keep from feeling miserable is to watch what you eat and drink. You can't take in the kind of fluids you were drinking before ESRD, because they're not naturally removed from your system. And you want to be careful about foods that are high in potassium and phosphorus.
It's possible to live an active, fulfilling life with kidney disease. Some of my patients are in their 80s and 90s and aside from kidney failure, they're doing great and actually look young for their age. On the other hand, a few of my younger patients (mid 20s-30s) don't take very good care of themselves, and don't mind their fluid intake or what they eat. They tend to leave feeling as lousy as they did when they came in.
One of our younger patients died at age 32 a few weeks ago. Kidney disease is a serious issue because, unlike other organ failure, it is systemic - it affects so many other organs in your body. It's as bad as diabetes and they often go hand in hand. A transplant won't always solve the problem, because if you aren't taking good care of yourself already, the transplant can easily fail. I've known patients who've had two or three kidney transplants and here they are, back on dialysis.
At any rate, I wish you the best with your treatment. See if one of the other modalities such as hemo might be better for you, and keep a positive outlook. ESRD doesn't have to be the end of the world.
- - - - -
"Never offend people with style when you can offend them with substance." - Sam Brown |
| |
|
| Pages: 1 2 :: [one page] |